I can not remember when it started. It seems to have been for sometime. She has always been achy in the neck, daily head aches, trouble sleeping. When we lost power in December I think is when it really started to show.
I am speaking about my youngest, Liz. She is 22. We have made several trips to the ER since Dec 26th. Now we go to a NL this week. We are not sure what is going on, her CT shows Cerebellum hanging like all of us CMers. We won't jump to a conclusion till she gets a full set of MRI's. Her face on the left side is very painful with shocks then numbness. Worries me she could have Trigeminal Neuralgia.
The only thing to come of ER trips is the Dr saying get her to a NL asap, we can not properly care for her.
She has had her first appointment with a NL of my choice. So glad he was taking new patients. He has ordered MRI's to check for CM however, he did make a Dx of TN... She is now just 1 week on taking medication and her daily pain has dropped but not gone. Even just the cold air flares up her face.
It is a whole different set of worries when it's one of our children. I have started her on the right path of getting the proper help.....I hope! The NL did a whole set of blood work including Vitamin D, Vitamin B12 and her Thyroid. I should be able to get these results today. Started gathering all her records for a file. We will take it one day at a time!
Now I have to come to terms with my biggest fears, that she too has CM and the challenge of caring for her! I am putting my faith in God to help us all through this. Faith he will give me the strength to support and care for her while continuing my own recovery.
Tuesday, February 3, 2009
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