This is so important to all of us that have Chiari Malformation. A Bill has been submitted by a Congressman in Pa. to designate every September as Chiari Awareness Month. The vote is in January.
There needs to be 100 Co Sponsor's to the Bill.....So we need YOU to call your Congressman and ask that he/she support House Res. 1422.
If this passes it will put us out in front! Doctors will have no choice but to treat those suffering with better care and STOP telling us that it is all in our heads!! I am hoping that it will get the disease more programs of genetic testing, a uniform standard of testing and most important the young doctors being taught this in medical school.
To read this Bill, I have created a quick link under Awareness.....House Res 1422. To help spread this to friends and family, go to www.thomas.gov search House Res 1422.
It is my hopes to soon see Purple magnet Ribbons on the back of vehicles all across America! Please help in supporting all of us that have Chiari, there are more of us out there then we all think are........
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1 comment:
This site is so helpful. I have so much fatigue and pain lately from the cold and my SM, its nice to know its not in my head.
KJ
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