I had my follow up with Dr Mullins (NL) whom was the original NL that sent me to Dr Heilman. I was so hoping to get some steroids to help me get more done. Oh no he tells me, I push the window enough! so I went back on Neurontine and Clonazapam for neck spasms. He of course was correct.....these 2 make a world of difference! The stabbing pains from Occipital Neuralgia have gone way down, makes me a little sleepy at times but really that's not a bad thing!
I am still struggling with the pressure behind my right eye and fluid feeling in my right ear. Honestly if I look over all my MRI / CT reports....each one states "Chronic thickening to the Sphenoid sinus". I am going to talk at some great length with my PCP during my appointment in January about this. Give me something.......figure it out! Help dry up and clean out my sinuses, lets just see if this is it! I will also ask my eye Dr this Friday if he can take a deep look into that eye and see if there is any signs of my sinuses in trouble! Gonna bring him the scans and reports. Enough is enough! The ENT I have had since 2006 SUCKS and I have refused to go back.....he is OLD and way to outdated for me!
In 2010 I don't want so many specialists, Endo, GI, ENT, NL, PCP and NS. Spoke with my PCP and he has agreed to monitor everything with the exception of NL & NS. If he feels I really need to go I will but ONLY after he has consulted with them via blackberry, email and or phone first! At this point it is mostly blood work and annual Endoscopy for Barrett's.
I hope I have done a good job with being Gluten Free, I go the 18th for new Celiac panel. Not sure if it's the right choice but I have stopped taking my Thyroid and Vitamin D for about a month now.....ya I feel it!! :( However I do not see the sense in having these things rechecked every 3 months because of the Celiac. I did discuss this with my PCP, he wasn't over joyed but understood the concept, get a true baseline since I am Gluten Free! I will be glad to restart taking the Thyroid meds....arghhh.
It was my goal in 2009 to start up a support group here in Ma. Well I have not gotten it off the ground other then support to all whom need it via calls, emails and even follow up with Dr Heilmans office. Perhaps it will happen in 2010. I am happy with the ground work I have gotten done, the wonderful people I have connected with so far. When I spoke to Joyce, Dr Heilmans NP yesterday, they are pleased about all the referrals and I am so grateful when a new patient calls.....tells them I referred then, there is not a 30 day wait! When the actual support group starts, I hope to have the help of his office with education.....
I seem to have settled into a good routine, walk 2 days per week, split up the weekly errands between 2 days as to NOT get over fatigued from driving and spend the other 3 days for caring for the house. Daily rest for about 2 hours really helps in recharging, keeping my head and neck from seizing. So far it is working well for I am able to do all the things I want and need to do! It's when I step outside this schedule and over promise, over do that I am laid up for a day or two! It truly is in the planning, rethinking how to tackle stuff that has been of the most benefit to my health, oh ya and learning the LIMITS! That took the longest and has been the most painful part of this journey.
2010, what will it hold? My son is getting married next Fall! I hold to continuing ground work to create a support group. More improvements to my house. I will golf a good 18 holes, tried it once this year and it was to early.....a little travel with my husband!
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