Tuesday, March 10, 2009

Spring is in the air

I am recovering very well. Still having trouble with the Vitamin D, haven't gotten my level into the normal range. My Endo doubled the dose and I am retesting in a few weeks.

The CM seems to be very much under control. Each week I am able to do more activities, carry more weight. My driving is back to where it was way before all this started, no more panic attacks or near fender bumping in parking lots!

My daughter has had her MRI, has been dx with TN. The medication is really effecting her in a negative way, she sleeps most of the day. It has not controlled the pain even going to max doses. I have her an appointment at Tufts with Dr Yao, he is the assistant professor to Dr Heilman. We go the 24th of this month. We are hoping she is a candidate to have Micro Vascular Decompression, by her MRI the V, VII and VIIIth nerves are involved.

My wonderful son in law brought home a puppy....his name is Reese. He is a lab/pitbull mix. What a handful he is. Loves to run and play. He keeps me going all day long. With the weather getting warmer we have started walking. He is very good on the leash and I so enjoy walking again, so I have made HIM part of my rehab! My little motivator!

The new PCP seems to be working out well. He has been very helpful so far. He very much cares about Liz and helping her with her many struggles that she has had to endure. FIRST Dr to tell her that most of her problems are due to the last surgery. Put her on Zoloft and this is helping.

While I was surfing the net last night, I found that this August in Boston there is going to be a huge convention of NS from around the world. One of the work shops is about CM. I am going to write to the Dr in charge of this workshop and request they spend some time covering HOW we are treated....I got plenty to write down. I would like to find out HOW I could get an invite and sit in on that workshop.....guess I got some work to do there.

I hope all my fellow CMer's are getting ready for spring! It has been a very long hard winter!

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